ATA Alliance for Thyroid Patient Education
American Thyroid Association, Graves’ Disease and Thyroid Foundation, the Light of Life Foundation, ThyCa: Thyroid Cancer Survivors Association, Thyroid Cancer Canada and Thyroid Federation International
American Thyroid Association® members have long served as advisors, consultants, and speakers for thyroid patient support organizations. As an association, ATA works closely with other highly regarded professional and patient education organizations to maintain the highest level of reliable information to the public and patients.
ATA Alliance for Thyroid Patient Education
The goal of our organizations is to provide accurate and reliable information for patients about the diagnosis, evaluation and treatment of thyroid diseases.
WHO WE ARE
The ATA is the leading organization devoted to thyroid biology and to the prevention and treatment of thyroid disease through excellence in research, clinical care, education, and public health.
The ATA’s values are:
- scientific inquiry
- clinical excellence
- public service
- patient advocacy
- worldwide collaboration and collegiality
- ethical conduct
Our mission is to fight cancer through research, education and inspiration.
Bite Me Cancer was formed as a nonprofit foundation in September, 2010, by Nikki Ferraro, who was 17-years old at the time. Nikki was diagnosed with Sporadic Medullary Thyroid Cancer in April 2010 when she was a junior at Chantilly HS in Virginia. Nikki was determined to lead a Relay for Life team just two weeks after her diagnosis. She named the team Bite Me Cancer and experienced immediate success. When Nikki decided to create a foundation a few months later, she wanted to continue the legacy of her team name and thus her foundation became the Bite Me Cancer Foundation. Nikki’s goals for Bite Me Cancer are focused on 2 large projects: (1) is to support teenagers battling all cancers by providing them with Teen Support Bags containing items specifically chosen for teenagers to use and (2) raising research funds and awareness for thyroid cancer.
With the Bite Me Cancer Teen Support Bag program, Bite Me Cancer has shipped out 700 bags to 25 hospitals across the United States in the first 2 years of the program. With the Bite Me Cancer research program, the foundation’s first grant was awarded through a collaboration with the American Thyroid Association to a researcher at the University of Texas M. D. Anderson Cancer Center in June 2014.
Founded in 1990, the Graves’ Disease Foundation offers support and resources to Graves’ disease patients, their families, and health care professionals. Their mission is to find the cause of and the cure for Graves’ thyroid disease through research, to improve the quality of life for persons with Graves’ disease and their caregivers and to educate persons with Graves’ disease, their caregivers, healthcare professionals, and the general public about Graves’ disease and its treatment. The web site features a monitored bulletin board.
The Light of Life Foundation, founded in 1997, is a nonprofit organization that strives to improve the quality of life for thyroid cancer patients, educate the public and professionals about thyroid cancer, and promote research and development to improve thyroid cancer care.
ThyCa: Thyroid Cancer Survivors’ Association, Inc., founded in 1995, is an international nonprofit organization, guided by a medical advisory council of renowned thyroid cancer specialists, offering support and information to thyroid cancer survivors, families, and health care professionals worldwide.
THYROID CANCER CANADA
Thyroid Cancer Canada is a non-profit organization founded in 2000. The organization works towards creating an environment in which people who are dealing with thyroid cancer, especially the newly diagnosed, are met with support and information. Their goals & objectives include facilitating communication among thyroid cancer patients, providing credible information about the disease, providing emotional support, and assisting thyroid cancer patients with voicing their needs to health care professionals and those who are responsible for health care policy.
THYROID FEDERATION INTERNATIONAL
Thyroid Federation International (TFI) was established in Toronto in 1995. Thyroid Federation International aims to work for the benefit of those affected by thyroid disorders throughout the world by providing a network of patient support organizations.
Patient education and support organizations
Bite Me Cancer
Light of Life Foundation
ThyCa: Thyroid Cancer Survivors’ Association, Inc.
Thyroid Cancer Canada
Thyroid Federation International
Hormone Foundation (promoting understanding of hormones and disease)
Magic Foundation (support and education to families of children with growth disorders)
Professional organizations providing information for patients
American Academy of Otolaryngology-Head and Neck Surgery
American Association of Clinical Endocrinologists
American Association of Endocrine Surgeons
International Thyroid Oncology Group
The Society of Nuclear Medicine and Molecular Imaging (SNMMI)
NIH (government) educational information
Clinical Center, National Institutes of Health
National Cancer Institute, National Institutes of Health
Talking to Your Doctor Website from NIH